Down Syndrome

Provided by the Washington State Department of Health

Information and Support for Families

Free Booklet

“Understanding a Down Syndrome Diagnosis.” This booklet, printed in English and Spanish, is endorsed by professional and advocacy organizations alike. Parents who have a child newly diagnosed with Down syndrome can request a copy for free through Lettercase or by emailing the Washington State Department of Health. This booklet is also available for free online including additional languages such as Korean, Chinese, Japanese, Vietnamese, Somali, Russian, and Spanish here.

Additional Resources

Local Resources for Families who have a member with Down syndrome (PDF)
A list of statewide support programs and regional support networks.

Oral Health Fact Sheet for Dental Professionals: Adults with Down syndrome (Trisomy 21)
This publication for dental professionals outlines best practices for working with adults who are diagnosed with Down syndrome (Trisomy 21).

Dental Health Guidance for Parents and Caregivers of Children with Down Syndrome (Trisomy 21)
This publication for parents and care givers outlines best practices for working with children who are diagnosed with Down Syndrome (Trisomy 21).

Additional Down syndrome resource materials for medical professionals and new families (PDF)

Genetics education materials for school success
How to support children with Down syndrome.

Guide developed by the American Academy of Pediatrics (AAP) to help parents and families of children with Down syndrome

More information on Down syndrome from the Genetic and Rare Diseases Information Center (GARD) While Down syndrome is not a rare disease, GARD includes diseases if genetics plays a role in the condition.


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  • Informing Families is a partnership for better communication, provided by the Washington State Developmental Disabilities Council in collaboration with the Washington State Developmental Disabilities Administration and other partners throughout the state.