Informing Families Voices: Maria’s Story



Maria with her son on her lap, both looking into the camera smiling.

English

Agárrense de mi mano que yo las voy a guiar

por Maria M. Godinez

El nombre de mi hijo es Emmanuel y él tiene 7 años ahora. Cuando Emmanuel tenía la edad de 16 meses, el empezó a cambiar. Nos dimos cuenta porque él tiene una hermana su cuate (que se desarrollaba normal). El empezó a dejar de hacer cosas, como comer solo. De comer solo, ahora le teníamos que dar. Tampoco caminaba y lloraba sin motivo alguno. Esto nos comenzó a preocupar y decidimos llevarlo a su pediatra de donde fue referido a Children’s Village. Y ahí fue en donde el recibió el diagnostico de Autismo a la edad de dos años.

Close up of young boy wearing a t-shirt and looking into the camera.Emmanuel prefiere jugar solo. Le gusta salir afuera y mirar los árboles y también disfruta mirar los animales. Él es bien cariñoso con sus padres y hermanos. Emmanuel necesita bastante supervisión, porque él no mide los peligros y también necesita seguir una rutina para estar más tranquilo y Emmanuel prefiere ciertas comidas.

Emmanuel recibe terapia ocupacional una vez por semana y terapia de lenguaje dos veces por semana. Emmanuel también está en un Plan Individualizado de Educación (IEP) en la escuela. Para nosotros, no fue difícil recibir estos servicios. Mi deseo para otras familias es que el doctor de cabecera de más información a los padres sobre los diferentes apoyos disponibles y que los padres de niños con necesidades especiales animen a otros padres a participar y a informarse más sobre los beneficios que hay para nuestros niños.

A mí, me ayudo asistir al grupo de Padre a Padre un grupo de padres de niños con necesidades especiales que se reúnen cada mes para compartir experiencias y conocer sobre recursos en la comunidad y también el participar en el grupo de Holanda. Otro grupo de Padre a Padre. Disponible para padres criando a niños con necesidades especiales de salud que aún se están ajustando a la noticia de que su hijo/a tiene necesidades especiales de salud o un atraso en el desarrollo. Este grupo se reúne una vez a la semana durante 8 semanas. Lo que más me ayudo al asistir a este grupo fue conocer a otras mamas con experiencias similares.

Gracias a Dios, no hemos tenido ningún desafío en [COVID].

Es un camino pesado, pero es algo que vas aprendiendo día a día, pero yo me apoyo en las que van delante de mí y a las que van detrás de mí, les digo “agárrense de mi mano que yo las voy a guiar.”

Estos niños son lo más grande que tenemos y tenemos que luchar día a día por ellos, porque ellos dependen de nosotros.

Hold Onto My Hand as I Will Guide You

by Maria M. Godinez

My son’s name is Emmanuel, and he is 7 now. When Emmanuel was 16 months old, he started to change. We realized it because he has a twin sister (who was developing normally). He stopped doing things, like eating on his own. From eating on his own, then we had to feed him. He was not walking either and would cry for no reason. This started to concern us and we decided to take him to his pediatrician who then referred us to Children’s Village. And that is where he was diagnosed with Autism at the age of two.

Emmanuel prefers to play alone. He likes to go outside and look at the trees. He also enjoys looking at the animals. He is very affectionate with his parents and siblings. Emmanuel needs a lot of supervision, because he doesn’t measure the dangers and also needs to follow a routine to stay calm and Emmanuel prefers certain meals.

Close up of young boy wearing a t-shirt and looking into the camera.He receives occupational therapy once a week and language therapy twice a week. Emmanuel is also on an Individualized Education Plan (IEP) at school. Receiving these services was not difficult for us. My wish for other families, though, would be to have the primary care doctor give more information to parents about the different supports available. And to have parents of children with special needs encourage other parents to participate and learn more about the benefits available for our children.

What helped me was attending the Parent to Parent group. A group of parents raising children with special needs who meet monthly to share experiences and learn about resources in the community and participating in the Holland group, another Parent to group available to parents raising children with special needs who are still adjusting to the news that their child has special health care needs or a developmental delay. This group meets once a week for 8 weeks. What helped me most by attending this group was meeting other moms with similar experiences.

Thank God, we have not had any challenges because of COVID.

It is a difficult road, but it is something that you’re learning on a daily basis. I receive support by those who go before me. And to those that come after me, I say, “Hold on to my hand as I will guide you.”

These children are the greatest thing we have, and we must fight for them on a daily basis, because they depend on us.


Voices is a series on the experience of BIPOC families who are either receiving or seeking services and support. These stories, in their own words, feature their successes, challenges, frustrations, and advice to other families who are looking to connect to services and supports. If you or someone you know has a story to share about receiving or seeking services, please send us an email.  We offer a stipends for articles and translations.



2021

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